Single-tasking

Without Prednisone for over a month now, my hands feel a little plumper. That sounds better than a little swollen, doesn’t it?

And a little stiffer. They look the same, but they don’t feel the same. And they don’t act the same. The Prednisone made them more limber, yet I still had some trouble with the digital multitasking of yore.

Today, my hands work better performing one gripping task at a time. Hold a pen, or hold the phone, or hold the notepad, or hold the remote, or hold a glass. If I try to manage several items at once, one invariably hits the floor.

My heart stops when it’s my phone that crashes on the tile. How can anything be so expensive? But in the grand scheme of things, it’s a small price to pay in exchange for pouring less medication into my system on a daily basis.

I wasn’t content to nix only one med, though. I told my rheumy I also wanted to wean down on the Methotrexate and he asked me a funny question.

“Can you afford it?”

I noticed the sudden perplexed look from the medical student shadowing him that day. One doesn’t consider paying for less medication as something one cannot afford. But I knew exactly where he was coming from and I didn’t hesitate.

“Yes,” I said.

“Because when I’m stable, I have to leave things unchanged,” he said.

He, unlike me, has to show up to work at his office every day. He cannot afford a flare.

But I can. My office is at the other end of the house. I don’t even have to get out of my jammies to show up at my desk.

I don’t want a flare, but I’m willing to take the chance. So I’ve been counting out nine tabs, instead of ten.

If worse comes to worse, I’ll go back to ten tabs a week. If a flare comes calling, I’ll chase it away with a Prednisone hit. After all, we’re not divorced, only separated.

 

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4 thoughts on “Single-tasking

  1. Carla Kienast

    I love this and I love the fact that you’re lowering your meds. As you know, I’ve doubled down on mine, but so far so good. We have to figure out what works for us not only as patients, but as people. Counting to 9 (instead of 10) for you and sending hugs!

    Reply
  2. phat50chick

    Irma – I just put up a pertinent post and I hadn’t read this yet. I’m trying to halve my meds for a lot of reasons. So far So good. And we have to be our own advocates and doctors. OK, nurses. You know how you feel and if you feel hurt, then you go back to 10. If you feel ok, you go to 8. Managing. That’s how I look at it.

    Reply
  3. J.G. Chayko

    I am starting on injectable methotrexate. My hands have had a rough winter and now I’m trying the triple therapy route. Wishing you all the best in “paying less for medication”. I’ll look forward to doing that one day myself 🙂

    Reply

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