Ever since I was diagnosed with a retinal hemorrhage in my right eye seven weeks ago, I’ve been wondering what my rheumatologist would have to say about it. I requested that a copy of my test results be sent to him from the ophthalmologist’s office. The main things I ascertained with the ophthalmologist at that time was that, yes, I could fly, as I had two trips pending. And yes, there was a 50/50 chance that it would clear up on its own.
Though I’ve been seen by this group for years, I was not comfortable following through on their suggested treatment, intraocular injections. Perhaps it’s unfair of me to say so, but they didn’t inspire confidence in me, not the kind where I would willingly subject myself, and my eye, to their prescribed treatment.
Since I did have the upcoming trips, I decided to lay low, go on about my business and wait to see what would happen. I knew I ran the risk of it worsening. As the ophthalmologist stated, “You might end up doing the shots just to get back to where you are now.”
The fact of the matter is that I see almost perfectly, when my left eye is compensating of course. When I close the left eye, it appears that I am seeing through a smudged glass door, not the whole door is smudged, just the top center portion. And with my new glasses for distance, it’s like I’m seeing 3D, as I told my son making him laugh. But as the optometrist told me, “I can’t fix what’s going on with the right eye.”
My readers (expensive compared to the 20-dollar-over-the-counter kind) don’t seem to afford me better vision than the 20-dollar-over-the-counter kind. I find that they are great when reading on my tablet or my phone, but not so great when reading on my laptop. I use an old cheap pair for that. In fact any old cheap pair as I have a pair in every room of the house. I’m not sure why the difference, perhaps it’s the distance from the screen. Who knows?
But that is what is most concerning to me, my ability to read. When I close my left eye, the words are blurred at the top and clear at the bottom. It’s possible to read, but difficult. I can’t imagine not being able to read at all. I’ve always read. As far as my memory goes, I’ve read. I don’t live one day without reading, ever.
My rheumatologist was concerned about this development and asked if the ophthalmologist had mentioned it having any relation to RA. I told him he’d said that we’d have to “work real hard to find a connection between the two.”
He agreed that I should get a second opinion and referred me to a retinal specialist he knows. Since I trust my rheumatologist implicitly, I feel I already trust this new specialist without ever having laid eyes on him. But that’s a good start. We shall see what he has to say and go from there.
Of note, my labs were all normal with two exceptions. My CRP was slightly elevated, but that usually is. It bounces up and down depending on what I don’t know. My left wrist is still bothering me, though it’s not persistent RA pain. I know what that’s like and that’s not what’s happening here.
But there is definite swelling on the left side of the inner wrist. While examining it, he turned it this way and that, twisting my fingers into a pretzel and bending my wrist in all directions without it causing a bit of pain. But then he pressed down on the swollen part and yes, that hurt!
I’ve been on very small weaning doses of Prednisone for over two months, and I would think that the wrist would have gotten worse, and the CRP higher, but there’s been no effect on it whatsoever. It’s not worse but it’s not better, so I’m to have it x-rayed. Perhaps it’s osteoarthritis because it’s not acting like RA at all.
The other abnormal lab was my white blood cell count; apparently it’s high and he wants me to repeat it in a week’s time. I explained that while I was with Carmen she caught a cold and gifted it to me. It’s been ten days now with cold symptoms, but it does take me a while to shrug these things off.
He wasn’t to be swayed from repeating the lab test even after I explained the probable cause for the WBCs being elevated. So here we go, another needle poke, but at least I’m gratified to learn my immune system does work. Somewhat.
Fingers crossed it all works out (without those creepy injections!). I’m with you. So much of my life is wrapped around reading the written word. Do please keep us posted.
Thank you, Carla. Sometimes I feel that my life revolves around doctor’s appointments. C’est la vie! Take care.
Hoping that your second opinion on the eyes will bring good news…I love to read, and would be so crushed if I couldn’t…and I can’t say I blame you for not wanting ocular injections – I barely tolerate my lab tests and that usually involves both arms (it seems they can never find a vein in the first try). I hope too that your RA/OA will subside soon and give you some much deserved relief. Sending you positive energy. Hugs.
I find out next week. I postponed it a few days. Needed a break from doctors’ waiting rooms! I can’t imagine having to be read to, never did like books on tape, but I’m jumping to conclusions, I’m sure. Thanks so much, J.
I think having our eyes affected can be one of the scariest moments for us. Sending positive thoughts that your second opinion will bring you the news you want to hear, and that this pesky problem is only temporary, with an easy fix. As always, please keep us posted on your journey. Take care of you!!!!
Thanks so much, Kim. We do take some things for granted. I’ve never questioned my eyesight, until now. But I tell myself there are worse things. I am lucky in so many ways.