Monthly Archives: March 2013

Sweet Memories

I remember when I used to scour the stores looking for just the right basket. And when I found that, I went hunting for the just the right gift. What was it they were into at that particular time, in that particular year? Their whims changed with the wind and turned me into a weather vane, always pointing in a different direction.

It gave me untold pleasure to follow their beckoning. I would hide to arrange everything in their baskets just so. And then hide the baskets themselves until that Saturday night when I had to stay up and wait till they were sound asleep. Only then could I sneak into their rooms and place the basket where it would be the first thing their eyes would light upon come Easter morning.

Those days, those moments are now filed away in my memory banks. They are images of times past, marching before my eyes like clips of a movie collage. I needn’t worry anymore about constructing the perfect Easter morning surprise. Now they surprise me. Now they give to me. The most precious of all gifts.

Easter Sunday

 

My granddaughter Carmen (for some reason reminding me of Carmen Miranda).

Happy Easter everyone!

Knock on Wood

prednisone

 

I have escaped the clutches of this little entity once again. The first time we met was after I ended up in the hospital with a pleural effusion and a pericardial effusion eight years ago. That’s how I was formally introduced to Rheumatoid Arthritis. It did not come calling lightly.

Instead of the chest tube I visualized upon hearing my diagnosis from the ER physician, I was put on a steroid regimen. A drug I’d administered countless times to my patients now became my lifeline. For a while. After several months, I successfully weaned off and stayed off, until this past year.

It started back in February of 2012. My right hand became so painful; I could barely run a brush through my hair. The pain soon had a stranglehold on my hand and on my day.

Forget cooking, forget housework, forget laundry. And worst of all, forget my bike. I couldn’t hold on to the handlebars with just one hand and remain steady as I pedaled. The endorphins my exercise produced were canceled out by the electric fire of pain. Anything that touched my hand sent an exquisite shooting pain up my arm. The joint at the end of my index finger was swollen into a ball and I had to use a brace to keep the finger immobilized.

Eating became a trial. I could barely hang on to a fork, and wielding a knife became an impossibility. It was the same with a pen. I think that hurt me the most, not just physically, but in my soul. Even so, I stubbornly wrote volumes of notes for a friend while I sat in the library. My ace-wrapped hand a blinding nest of pain, I held that pen and I wrote and I wrote. RA was not going to deprive me of even that.

I moved up my regular appointment a few weeks, but I still had to wait too many days before my rheumatologist could see me. I feared a cortisone injection was coming. I was afraid I’d wimp out at the sight of a needle going into my hand, though needles going into my arm every two months doesn’t seem to bother me.

But, he didn’t touch my hand and there was no mention of needle sticks. One glance sufficed. “It’s a wonder,” he said, “how RA can knock you down. Just one affected joint can immobilize you.”

Oh, yes.

Enter Prednisone. Ambrosia of the gods, it seemed. In short order, it gave me back my hand. Handed me back my life.  It became my crutch. I welcomed it and it moved in, lock, stock and barrel.

Oh, I tried to evict it after a while. Several times I started on my journey to displace it from my life. But then my hand would hurt and I’d run back to its protection, its shelter, its sanctuary. I was afraid of the pain, but I was terrified of my immobility.

Pain I could deal with. Loss of independence, I could not. So, I sought my fix. A literal fix, a repair. I turned and returned to the tiny white pill that had restored my life to me.

My attempts to sever that relationship continued, however. I did not like the dependence. I did not like how a bunch of little pills controlled me. The Methotrexate I accepted, the Prednisone galled me.

I began a hit and miss schedule. If I remembered, I took it. And many days I would conveniently remember to forget. Every morning, I’d flex my hand. There would be some tightness, some stiffness, some soreness, sometimes. Most days, my hand felt fine.

My labs have come back normal the last two visits. My CRP, sed rate, all the numbers fall where they should. The Prednisone stays in its bottle. And that stays in the medicine cabinet.  I give myself permission to hope that it also stays in the pharmacy.

Now, if you’ll excuse me, I’m going to go knock on wood.

 

Beautiful

She keeps popping in and out as I work at my desk. Every few words I have to stop typing to see what she needs. Her tiny flashlight that’s blue and not pink. A Beanie Baby kitty that sits among my books. Paper from my printer to draw a green robot.

Finally, she bounces in wearing totally different clothes and shoes.

“Why did you change your clothes?” I’m amazed she’s such a quick-change artist.

“I want to look beautifo.”

“You know where you look really beautiful?”

She eyes me expectantly.

“In your chair watching Sponge-Bob.”

She sucks in her breath and runs.

The Tin Woman

This streak of cold days makes me feel like I need oiling. We had a reprieve yesterday, if you can call it that. I was still freezing. The day before, I went around the house wrapped in a blanket. I do have sweaters and jackets, even though living in South Florida you’d think I wouldn’t need them. Isn’t that why all the Snowbirds come down here? To get away from the cold?

A blanket just seemed much more soothing. And what makes me colder is the fact my work is done sitting in place. Movement would warm me up.

In fact, two days ago, I started my work while still under the covers.

“Aren’t you getting up?” asked my husband.

“You realize I don’t have to get out of bed to do my work?” I replied with a smirk.

Ah, the joys of beta reading and editing. But eventually, I had to go to my desk and my office used to be the attached garage. It’s got my sewing and writing needs all neatly arranged but talk about cold! Houses down here are built to stay cool, so when it’s cold outside it’s freezing inside.

Eons ago when I was young, I spent eight years in Michigan. I can still see myself running around in jeans and a simple leather blazer in zero degree weather. I was in my twenties, what did I know? Today I would need snow pants and two parkas. That attire would guarantee I could not move about easily.

This weather serves the same purpose. I can’t move around easily in my virtual snow gear. The cold turns me into the tin woman. Wish someone would come around and squirt some oil into me.

blizzard

After a blizzard, the scooped up snow was taller than I was. But at least, I was wearing a sweater dress on this cold day. Albeit, a very little one!

The Adventures of Carmen

My firstborn gave me a gift last October. Well, he and his wonderful wife. A most precious gift. Carmen joined our family and took up permanent residence in my heart. There is no greater joy, no medicine more effective than my two precious granddaughters. Their pictures surround me as I work. Thoughts of them buoy me throughout the day.  Here’s the other love of my life.

Baby granddaughter

Hello, World. My name is Carmen. My arrival beat Abuela’s by four days! (She’s Na to my cousin Alyssa)

Going home!

Going home!

Here I am at seven days old.

Here I am at seven days old. I was such a good girl on my first professional photo shoot.

Baby pictures

You know I like to float in my own universe.

Baby picture

Who put this huge bow on my head? This is carrying the gift metaphor a little too far!

Christmas

OK, who’s this red-suited guy and what does he want with me?

baby picture

My abuela made this cozy blanket for my daddy, but I think I’m keeping it.

baby picture

You said dinner was going to take how long?

Curious George

Who is this guy now, and how did he get into my room?

baby picture

Hey, World, I think I like it here!

I love you, Carmen!

The Best Medicine

Waking up to café con leche and a toasted cinnamon raisin bagel. There’s nothing better than that. Unless it’s having it served in bed. We’ve established a give and take that has only taken us 32 years to perfect. Or try to perfect.

The only thing missing this morning is a little voice saying, “Na, I want some juice.” After a week with her, I got used to having my granddaughter around. But, her mother came yesterday morning and whisked her away. Now I feel robbed, but strangely rested.

My heart, though, needs no rest. There are vestiges of her presence about the house. A pile of Legos on the floor by my bed. I left them there all day on purpose. To remind me of her, and anyway they weren’t on my side of the bed. I needn’t step over them on my travels and her Pa was gone to work all day.

The living room is littered with her books and crayons, her throne askew, her pint-sized easy chair in which she installs herself and pronounces, “I want SpongeBob, Na.” Thankfully, SpongeBob is usually on TV when she requests it because Na forgot how to work the Xbox, and the Blu-ray player, forget it.

She is back to her usual self, thank goodness. And Na must get back to her usual self and her usual duties. There is an editing class final to do and another writing class to sign up for. And seriously explore setting up a freelance editing business. Why not? I do it for free already!

The clock is ticking and my nursing license expires in a few weeks. I’ve lost the debate with myself. I will renew it, but that means I have to order a Continuing Ed class and pronto. I’m still toying with the idea of having a job where I have to punch in. Keeping my license active gives me the freedom to keep toying.

I just don’t want to learn any more about breath sounds or heart sounds, and definitely not bowel sounds! I want to learn something interesting. Something that suits my needs and interests of today. How about health care journalism? Now that I could sink my teeth into.

But, I might settle for a class on humor. I’m a big believer in humor therapy. Laughter is the best medicine. I used to give up precious sleep back when I was a nursing student. M*A*S*H came on at 11:30 at night and I had to watch, had to laugh. To wash away the stress of the day. Working, studying, keeping house and raising my young son while going through a divorce was no picnic. And there was nobody to bring me coffee in bed then.

Love

Home from the hospital, watching good ole SpongeBob. He is so reliable!

Quilting

I managed to finish and turn in the quilt in time, barely. Have to ask how they did in the raffle.